The NHS Commissioning Board operating as NHS England - Specialised Commissioning
Cystinosis Diagnosis and Management Advice Service
This is a contract result notice, not an open opportunity. Details from the official award data.
Cystinosis is a very rare inherited lysosomal storage disease presenting in infancy (95% of cases) with severe kidney disease but subsequently involving multiple organs (eyes, thyroid, liver, diabetes, muscle deterioration).
Patients often present to paediatric nephrology services although multi organ disease requires multi-speciality input.
Effective drug therapy and renal transplantation has improved the life expectancy of these patients.
This project comprises a provider selection process to commission adult and paediatric cystinosis services.
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- OCID
- ocds-h6vhtk-02ce6d
- Stage
- award · Awarded
- Source
- Find a Tender
- Buyer ref
- 028455-2022
Contains public sector information licensed under the Open Government Licence v3.0. Source data © Crown copyright.
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